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Independent Member for Clark, Andrew Wilkie, spoke about the impacts of brain cancer and the need to invest much more in research and treatment.   

“Unfathomably, brain cancer receives less than 5 per cent of total cancer research funding, and consistently misses out on adequate federal funding for dedicated brain tumour nurse specialists nationally,” Mr Wilkie said. “Perhaps this is because the burden of the disease is not well-understood and the marked level of disability associated with these tumours flies under the radar.

“Well, it hasn’t flown under my radar, thanks to the passionate efforts of advocates, and the fact that in regional areas like Tasmania the burden is even heavier. For instance families are often forced to travel interstate for care or clinical trials. Many navigate fragmented systems, disconnected records and inconsistent financial support. They fight battles on every front, whilst always being aware of how precious each remaining day with their loved one is.

“I call on the Government to increase brain cancer research funding and commit to sustainable investment in this sector. They must also prioritise dedicated clinical care and support services. And they should expand access to clinical trials.”